Event Recordings


The ALS Strategic Planning Workshop is a two-day virtual event open to the public during which working groups of scientists, clinicians, advocates, and people living with ALS will present an overview of highest priorities for research that will lead to the discovery of effective interventions for the diagnosis, treatment, management, prevention, or cure of ALS.

The workshop provides additional opportunity for input, questions, and new ideas from the interested stakeholders and the broader ALS community.


A working group of the NINDS Advisory Council was convened to explore the landscape of ALS research and draft recommendations for a Strategic Plan. This working group is comprised of a Steering Committee and 5 topic-specific working groups. The topics covered include (order does not indicate priority):

  • Accelerating research on the biology behind ALS
  • Translating fundamental research into potential ALS therapies
  • Optimizing ALS clinical research
  • Optimizing the Quality of Life of Persons Living with ALS and Caregivers
  • Identifying opportunities for collaborations and partnerships

A Steering Committee and topic-based Working Groups comprised of scientists, clinicians, advocates, people living with ALS, and their caregivers used information from a Request for Information, along with their own knowledge of the research landscape, to develop draft priorities for accelerating research on the biology behind ALS, translating fundamental research into potential ALS therapies, optimizing ALS clinical research, improving the quality of life for persons living with ALS through research, and identifying opportunities for collaborations and partnerships. A detailed timeline is listed below with past and upcoming opportunities for public comments on draft priorities.

Timeline of ALS Strategic Plan


A more detailed agenda can be found on the Agenda Page.

Wednesday, October 26th

10:00 AM ET Welcome and Opening Remarks
10:25 AM ET Opening Remarks 
10:40 AM ET Lived Experience Panel 1
11:20 AM ET Accelerating Research on the Biology Behind ALS 
12:35 PM ET Lunch/Break
1:00 PM ET Translating Fundamental Research into Potential ALS Therapies
2:15 PM ET Break
2:30 PM ET Optimizing ALS Clinical Research
3:45 PM ET Listening to Public Stakeholders
4:45 PM ET Adjourn

Thursday, October 27th

10:00 AM ETWelcome, Reflection on First Day, and Preview of Second Day
10:15 AM ETLived Experience Panel 2
11:00 AM ETOptimizing the Quality of Life of Persons Living with ALS and Caregivers
12:15 PM ETLunch/Break
12:45 PM ETIdentifying Opportunities for Collaborations and Partnerships
2:00 PM ETBreak
2:15 PM ETListening to Public Stakeholders
3:15 PM ETWrap-up and Summary of Key Themes or Potential Changes to Priorities
3:45 PM ETAdjourn