WHO WE ARE
Steering Committee of the NANDS Council Working Group on Establishing a Strategic Plan for the ALS Research Community
Rita Sattler, PhD, (Co-chair) Barrow Neurological Institute, Dignity Health St. Joseph’s Hospital and Medical Center
Aaron Gitler, PhD, Stanford University School of Medicine
Layne Oliff, PharmD, NEALS Research Ambassador/The International Alliance of ALS/MND Associations
Ellyn Phillips, ALS Association Greater Philadelphia Chapter
Christine Torborg, PhD, (Designated Federal Official) National Institute of Neurological Disorders and Stroke
Accelerating Research on the Biology Behind ALS Working Group
Clotilde Lagier-Tourenne, MD PhD, (Co-chair) Harvard Medical School
Ammar Al-Chalabi, MB, ChD, PhD, (Co-chair) Maurice Wohl Clinical Neuroscience Institute, Kings College London, UK
Piera Pasinelli, PhD, Thomas Jefferson University, Jefferson Weinberg ALS Center
Michael Ward, MD, PhD, National Institute of Neurological Disorders and Stroke
Sami Barmada, MD, PhD, University of Michigan, Ann Arbor
Hemali Phatnani, PhD, Columbia University Irving Medical Center
Sali Farhan, PhD, McGill University
Leonard Petrucelli, PhD, Mayo Clinic Jacksonville
Myriam Heiman, PhD, The Picower Institute, MIT
Cooper Penner, BS (MD PhD student), University of Pennsylvania
Amelie Gubitz, PhD, (Facilitator) National Institute of Neurological Disorders and Stroke
Translating Fundamental Research into Potential ALS Therapies Working Group
Neil Shneider, MD, PhD, (Co-Chair) Columbia University
Stacie Weninger, PhD, (Co-Chair) F-Prime Biomedical Research Initiative
Joe Lewcock, PhD, Denali Therapeutics
Frank Bennett, PhD, Ionis Pharmaceuticals
Stefan McDonough, PhD, Atalanta Therapeutics
Henrik Zetterberg, MD, PhD, University of Gothenburg
James Wilson, MD, PhD, University of Pennsylvania
Thomas Gaj, PhD, University of Illinois Urbana-Champagne
Nadia Sethi, DDS, ALS Therapy Development Institute
Emily Caporello, PhD, (Facilitator) National Institute of Neurological Disorders and Stroke
Optimizing ALS Clinical Research Working Group
Merit Cudkowicz, MD, (Co-chair) Massachusetts General Hospital
Tim Miller, MD, PhD, (Co-Chair), Washington University
Gwen Petersen, Person Living with ALS
Melanie Quintana, PhD, Berry Consultants, LLC
Alberto Ascherio, MD, DrPH, Harvard School of Public Health
Jeremy Shefner, MD, PhD, Barrow Neurological Institute
Christina Fournier, MD, Emory University
Chiadi Onyike, MD, Johns Hopkins University
Stephen Goutman, MD, University of Michigan
Robert Bowser, PhD, Barrow Neurological Institute
Christine Torborg, (Facilitator) PhD, National Institute of Neurological Disorders and Stroke
Optimizing the Quality of Life of Persons Living with ALS and Caregivers Working Group
Terry Heiman-Patterson, MD (Co-Chair) Temple Health
Jean Swidler (Co-Chair), BA , Genetic ALS & FTD Advocate
Emily Plowman, PhD, CCC-SLP, University of Florida
Melanie Fried-Oken, PhD, CCC-SLP, Oregon Health and Science University
Zachary Simmons, MD, Pennsylvania State University
Chelsey Carter, PhD, MPH, Yale University
Jinsy Andrews, MD, MSc, Columbia University
Jane Hettinger, PhD, (Facilitator) National Institute of Neurological Disorders and Stroke
Steve Kowalski, Person Living with ALS
Identifying Opportunities for Collaborations and Partnerships Working Group
Lisa Gold, PhD, (Co-chair) (Retired) Merck, Pfizer
Dan Doctoroff, JD, (Co-chair) Target ALS
Kuldip Dave, PhD, The ALS Association
Jeff Rothstein, MD, PhD, Johns Hopkins University
Allison Bulat, BA, Northeast Amyotrophic Lateral Sclerosis Consortium®
Sharon Hesterlee, PhD, Muscular Dystrophy Association
John Ravits, MD, University of California, San Diego
Andrea Pauls Backman, MBA, Les Turner ALS Foundation
Neta Zach, PhD, Takeda
Ed Rapp, BSBA, Answer ALS
Robyn Bent, RN, MS, U.S. Food and Drug Administration, ex officio
Carlo Quintanilla, PhD, (Facilitator) National Institute of Neurological Disorders and Stroke
Samantha White, PhD, (Facilitator) National Institute of Neurological Disorders and Stroke
Federal Participants (ex officio)
Paul Mehta, MD, National ALS Registry, Centers for Disease Control and Prevention
Billy Dunn, Center for Drug Evaluation and Research, U.S. Food and Drug Administration
Michelle Campbell, Center for Drug Evaluation and Research, U.S. Food and Drug Administration
Teresa Buracchio, Center for Drug Evaluation and Research, U.S. Food and Drug Administration
Elizabeth Hillebrenner, Center for Drug Evaluation and Research, U.S. Food and Drug Administration
Michelle Tarver, Center for Devices and Radiological Health, U.S. Food and Drug Administration
Diane Maloney, Center for Drug Evaluation and Research, U.S. Food and Drug Administration
Bryan Wilson, Center for Biologics Evaluation and Research, U.S. Food and Drug Administration
Celia Witten, Center for Biologics Evaluation and Research, U.S. Food and Drug Administration
Michelle Adams, Commissioner’s Office, U.S. Food and Drug Administration
Lana Shekim, PhD, National Institute on Deafness and Other Communication Disorders
Rebekah Corlew, PhD, National Institute of Neurological Disorders and Stroke
Emily Carifi, PhD, National Institute of Arthritis and Musculoskeletal and Skin Diseases
Van Nguyen, PhD, National Institute of Arthritis and Musculoskeletal and Skin Diseases
Enrique Michelotti, PhD, National Institute of Mental Health
Jonathan Hollander, PhD, National Institute of Environmental Health Sciences
Cristina Kapustij, MS, National Human Genome Research Institute
Tiina Urv, PhD, National Center for Advancing Translational Sciences
Lisa Opanashuk, PhD, National Institute on Aging
Coryse St. Hillaire-Clarke, PhD, (Alternate), National Institute on Aging